Full Moon Rising (Two Full Moons Ago)

Full Moon Rising (Two Full Moons Ago)

Two months ago my Aunt and I went to the beach to watch the moon rise. However it had already risen so we sat on our towel, she pulled out some drinks and snacks from the cooler that she prepared and we talked a lot.


Random Thought of the Day- 16 April 2014

I can’t wait until the day that I wake up, look in the mirror, and see myself again.

A Good Day after Work

There I am!

An Okay Day

Aside from everything that ails me daily, I had an okay day because I had a little more energy than I did yesterday. Some members of my family went to my favorite shave ice stand, I was able to help my Aunty & Uncle who recently moved back to the island sort through their belongings now that their things arrived via freight, & I completed three errands. Doesn’t sound like much but it’s the most I have been able to do in a long time. And I’m happy that my pain medication hasn’t made me sleepy. I’m tired of the insomnia and being exhausted on a daily basis for weeks now/ maybe months. Time flies by. Sometimes I don’t even know what day it is. And I was embarrassed at the pharmacy because I apparently forgot that I was there last week & already picked up the medication that I thought I was out of. There’s just so many of them I don’t even know them all by name. I want to just assign letters or numbers to them but I guess it doesn’t work that way. I get to wear a new pajama (with a skirt at the bottom) that my Aunty L got for me as well as some Harley Davidson swatches that were pretty cool. She always gives me the best gifts. The theme of the pj is a girlie Batman. She said she couldn’t find Wonder Woman but I still love it. I’ll be the first to admit that I will never “grow up” and I don’t care, I’ve accepted it. 🙂 I had also hoped to buy a larger flat screen tv but knew it would be a while, maybe even a year before I could do that. I was surprised & more than grateful when my Uncle & Aunty who just moved back from California gave me one that they weren’t going to use. I have that up & running. Today I bought a DVD player so I could at least watch movies in my room at night when I can’t sleep. I don’t have cable in my room but I rarely watch tv so that’s not a bad thing. And Mia is snuggling with me tonight. I think she likes that she doesn’t have to sleep in the livingroom into the wee hours in the morning while I tinker away at whatever I have chosen to preoccupy my time until I get bored & start something new. For pain

I’ve found that Salon Pas patches work okay on certain types of pain whether joints, muscles, neck, back, wherever. It at least alleviates the pain a little, to me it’s better than nothing but I’m sure you may know of something that works even better. Oh, and peppermint (the essential oil) helps more of the minor headaches. Not the, “I want to bash my head on the concrete wall” headaches. You may want to talk to your doctor first and also make sure you’re not allergic to it. If you do have any suggestions, please let me know. I really do not like toads. They creep me out A LOT! Usually when I walk outside in the dark I will use a flashlight but I haven’t seen many toads and I was only several feet from the house. I felt a thud on the tip of my slipper & got a little freaked out because of the possibility that I just kicked a toad in the butt with slippers on! So technically I could have touched it with my bare foot! I cringe at the thought. So I turned around and saw a toad just sitting there. I ran to the house, as I gross shuddered. Toads for one thing are brown & bumpy. Tree frogs however are more aesthetically pleasing with their vibrant  green and red coloring as well as their cute fingers. But I believe my main problem with toads stem from my childhood. One day after school I was walking around the garden & stepped in a hole. I looked down and was just about to remove my foot from the hole & go on my merry way when all of a sudden a toad jumped right on top of my foot! I panicked, I screamed, it got worse when I lifted my foot to shake it side to side to get it off of me. He must have had a phenomenal grip because he wouldn’t let go. My heart raced faster as I watched the toad hold on and thought he would never let go. When I finally managed to get the toad off of me, I ran, still shaking my foot. I felt traumatized. 🙂 I could still feel the sensation of the toad holding onto my foot and had a succession of involuntary “gross shudders.” Ewwww.

Down Syndrome Awareness Day

I wore mismatched socks for Down Syndrome Awareness Day. I was disappointed that I couldn’t be at work and was still at home sick but wanted to show my support.

New Page

I started a new page today but am not sure if it shows up like posts do. I’m still trying to learn this whole “blog thing.” I named it “Randomosity” because that’s exactly what it’s about. Just a whole bunch of random stuff. Thoughts, questions, my day (whether boring or interesting), crazy stuff, basically whatever I want to write about. You can check it out for a little more information but I’ll start posting more later tonight or more likely tomorrow.

I encourage any comments, feedback, especially comments. I think it would be fun to interact. I don’t know about you, but I tend to isolate myself when I’m sick. I found that friends don’t come around as much as they sometimes used to and they stop asking if you want to go out because: 1) Either I say I want to go and then the day comes and I physically cannot; or 2) I say no because I don’t feel well. I wish they would still ask just for the chance that I actually felt semi-okay that I could get out for a little while, but in my experience, that doesn’t happen. So I self-entertain, which is perfectly fine with me and then when I get tired of my current antics, I can rest, or go on to something else. It’s hard when I have company and then get really exhausted or feel sick and don’t want to be rude and ask them if they could leave (especially if I’m the one that invited them over)! So being alone often works out best. But then sometimes it gets lonely and I wish I had company, someone to talk to other than myself.

Also because we all share the same “disease” or something similar, we understand what each other is going through much better than someone who has never been through what we have. It truly is unfathomable. If I think about it and didn’t go through this, I wouldn’t understand, no matter how much it was explained to me. The pain, exhaustion, headaches, joint aches, everything, can only be understood in the context as to what we personally have experienced ourselves. And for the “healthy” person who maybe never needed pain medicine, never got sick, never was poked and prodded for innumerous testing, biopsies, spinal taps, surgeries, etc. could not be expected to fully comprehend even a fraction of what we have gone through or what we put up with on a day to day basis. I dislike when someone implies that I am weak, have a low pain tolerance, am “always” tired, etc. because if they only knew. If they could just experience a moment, an hour, a day, a week of this, I don’t think most people could handle it. I think we are all stronger than we think we are and definitely stronger than some choose to believe, even in those times when we may actually feel weak.

Show and Tell

I was just thinking I had to share this photo of Mia because she is just the cutest thing ever. I love that she will always look like a puppy. And I will try not to post all kinds of stuff about her here. She always cheers me up, is always so excited to see me, and she is just absolutely wonderful in countless ways. Then I was thinking about “Show and Tell” sometime in Elementary School. So here is my “Show and Tell:”

Mia- January 2014

Mia is the best medicine.